Coping With Epilepsy
- Coping with child's epilepsy | Epilepsy Foundation
- Coping with epilepsy :(?
- Coping with epilepsy epilepsy education series
- How to cope with epilepsy
I am hoping for some advice and support. I am really struggling with coping right now. I worry incessantly about my 7yo daughter's seizures, learning problems, and memory issues. On top of all this, it seems she may have an auditory processing disorder. It causes me to be physically ill and to shed many tears. I worry about if she will be able to live alone, go to college, drive, care for herself, live her dreams. Will the seizures increase? Will the meds keep them away? So far, she only has them when sleeping. Will I miss them? Will she have SUDEP and not be there in the morning? I wake up dozens of times each night to watch the video monitor we have on her. Will she start to have more kinds of seizures? Was that staring episode a seizure? How can I get her to retain information? What am I doing that I shouldn't be doing? Will feeding her only organic food and taking away the chemicals in the house help, or am I wasting my time? Are there supplements/alternatives to use in addition to what I am doing?
Coping with child's epilepsy | Epilepsy Foundation
Pen writing on paper. I stress over and over how epilepsy can be a roller coaster ride. Everyone's epilepsy journey is a much different roller coaster ride so finding ways to cope with it may be hard. After working with my friend Aly, we came to the conclusion that writing is one of the best ways to cope with your epilepsy or any chronic illness you may have. We hope we inspire you just a little bit to pick up that pen and start writing down your amazing story. Aly (@acanfieeld) — All of the greats have their stories told over and over again in schools and churches. Harriet Tubman, Abraham Lincoln, Alexander the Great, and the list goes on and on. They have their stories shared because of something miraculous and heroic they did. However, so-called ordinary people do noble things every day, and their stories go untold, which is why I have decided to share my story and encourage others to do the same. Related: Download The Mighty app to connect in real time with people who can relate to what you're going through.
Who knows, you may end up wanting to blog! Writing offers so many benefits, and as you can see it can help cope with epilepsy. You don't need to be an author to write. Anyone can grab that pen and paper to start writing their amazing stories down. Give it a try! Read more stories like this on The Mighty: 3 Tips for Dealing With Cyberbullying While Living With Chronic Illness The 6 'Ugly' Sides of Epilepsy Most People Don't Like Talking About When I Was Discriminated Against By My College Roommates Because of My Epilepsy The Word That Bothers Me as a Person With Epilepsy
Still, only about one-third of them would receive any kind of treatment for it. Among all people with epilepsy, as much as 30 percent will suffer from depression. This condition often sounds milder than it is. Depression is more than just a slew of bad days and tearful episodes, though. For many, it could spell the end of their life. The suicide risk among people with epilepsy is approximately 10 times higher than it is for the general population. Treatment Bouncing back from depression is difficult when no one is sure what is causing it. If epilepsy is the cause, that only presents further difficulty. Whether it's an emotional or biological catalyst, knowing it's the cause doesn't help to remove depression from the equation. Searching for a root cause will often lead patients and their doctors in circles. Instead, treating symptoms in the meantime is the most effective approach. Prescription antidepressants, coupled with intensive therapy, support group meetings, and lifestyle changes to incorporate more positivity are a great start at improving both conditions.
Coping with epilepsy :(?
In many instances, that is how it works. However, depression is far more than an emotional response to a diagnosis of epilepsy for many of these individuals. Studies show that depression exists in people with epilepsy who suffer from consistent seizures. It also shows that individuals who go months on end without suffering from seizures still suffer from depression, too. The two events seem to occur regardless of the other's influence. There are many reasons that epilepsy and depression may coexist. For starts, both use the same neurological pathways in the brain to operate. In addition, genetic predisposition may account for the development of both disorders in some people. Mood disorders are no stranger to epilepsy for this reason. While the epilepsy may not be causing the depression, the latter surely makes it more difficult to live with the former, and vice versa. Teenagers who suffer from epilepsy seem to be especially prone to developing depression. In one study, it was noted that roughly 60 percent of teens living with the disease would incur a depressive disorder.
Other tips for good quality sleep include using your bed only for sleep and sex and keeping your bedroom quiet and dark. 6. Do all you can to stay healthy. This includes getting your recommended immunizations and washing your hands thoroughly, particularly before, during, and after preparing food and when around someone who is sick. This will help cut down on your unnecessary sick days. You may have to miss work due to doctor's appointments or seizures, so keeping otherwise healthy can make sure you don't call out sick too often and jeopardize your employment. Eating a healthful diet and engaging in regular exercise can also keep your immune system in tip-top shape. Talk to your doctor to make sure you are up-to-date on all vaccines and doing all that you can to stay healthy.
K Krakow et al. Seizure. 1999 Apr. Free article Abstract We investigated the coping behaviour and its correlation with demographic and illness-related data, depression, locus of control and psychosocial adaptation in 40 patients with intractable epilepsy with primarily or secondarily generalized tonic-clonic seizures. Three standardized self-reporting questionnaires were applied, which are the Freiburg Questionnaire of Coping with Illness (FKV), the von Zerssen Depression Scale (D-S), and the IPC-questionnaire measuring generalized locus of control beliefs; the Social Interview Schedule (SIS), a semi-structured interview, was used to measure the psychosocial adaptation. Active, problem-focused and compliance strategies were predominantly used and regarded as most helpful. Hence, the epileptic patients use similar coping patterns reported in patients with other non life-threatening chronic diseases. The level of depression was moderate and in the range of other chronic somatic diseases.
Coping with epilepsy epilepsy education series
What's more, your employer must provide "reasonable accommodations" if needed. Accommodations must be considered reasonable and not cause a company undue hardship or expense. An example of reasonable accommodations may be flexible hours when changing medication, a private spot to rest after a seizure or a rubber mat in your work area to cushion a fall. Not everyone with epilepsy will require accommodations in the workplace. " No seizures, no side effects " is a motto of the Epilepsy Foundation. Today's epilepsy treatments—medication, surgery or a combination—can prevent seizures or reduce seizure frequency for most people. This is good news. Some trial and error may be involved before your find the right treatment. Work with your physician to make sure you are on the most effective treatment plan for your epilepsy. Your needs may change over time, and there are always new therapies in the pike, which is why follow-up care is essential. 3. Confide in a colleague. Whether an assistant, co-worker or employer, make sure someone who you trust is aware of your epilepsy.
It will help you to seek support at times when you feel less able to help yourself. Support groups for people with a variety of different seizure disorders can also be beneficial in helping you cope with your illness. Wherever you can seek healthy support to help you gain a positive hold over your physical, emotional or even spiritual aspects of your life. Get enough rest and sleep: For many poor sleep is a trigger for seizures. It is important that you do all you can to get a good night's rest every day. Get active: A healthy amount of exercise can improve your overall physical health. If your condition affects your mental health, exercise is a great way to alleviate symptoms of depression or anxiety and help you manage stress. Whatever exercise activity you choose, it's important to rest when you get tired and stay sufficiently hydrated. Make healthy choices: Refrain from smoking and indulging in aggravating substances such as alcohol that may have an adverse effect on your condition and disrupt the effectiveness of your medication treatment.
How to cope with epilepsy
Am I doing anything that could make them worse? Should I sleep with her? How can I care for her properly and balance caring for my other children? And on and on and on... It is heartbreaking for me. Her first seizure was 3. 5 years ago. I was physically ill for an entire year afterward. I still get bouts of illness because I worry. And, every single day, I can feel the stress hormones coursing through my veins. I have tried every trick in the book, and I am SO very grateful it is not worse. I just cannot bear the thought of losing her or having her suffer. I seem to bear the entire burden of this as my husband does not seem to suffer as I am. How do you cope? How do you deal with the unknowns? Sometimes I just do not think I can hold up another day. It is so very painful to me. Please help.
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